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• 26th June 2007 Am home, I got released at 11am today, bit like Paris Hilton :) ! I had my operation last Wednesday, I went down to theatre at 9am, Mummy took me into a room and they gave me some magic milk and I went to sleep in Mummy's arms. I know Mummy gets upset every time they give me the magic milk but what she does not know is that I really go and play with the teletubbies in teletubbie-land so she does not need to worry about me. The operation lasted 5 1/2 hours. The surgeons managed to removed all of the tumour. This is amazing as we only expected them to remove 2/3s of it so thank you very much Mr Surgeon person. I went into the recovery room and when I woke up Mummy was still there waiting for me. Everyone expected me to go to ICU but I ended up going back on my ward, I don't need ICU care, as long as Mummy and Daddy are with me then that's all that matters. The next day I just stayed in bed watching DVDs all day but on Friday I wanted to go for a walk so I got up and went to the toy room and played with the toys. Am not going to let this operation get in the way of my toys! I started eating and drinking on Saturday and then I was back to normal on Sunday, 4 days after a operation to remove a golf ball size tumour from my liver and am acting as if nothing has happened. GREAT! :) So now am home and playing with all my toys and watching TV. The next step in my treatment is radiotherapy in July so I have a few weeks to build myself up. Thank you everyone has and is taking part in our Raffle, this has been a huge success and has raised a lot of money for my appeal so a BIG thank you. Love Emma 18th June 2007 What a busy 2 weeks. Hello everyone, I have been a busy little girl since I last updated but it has not been good news. When I was in transplant I had an ultrasound on my belly, the one with the cold jelly! anyway they seen something by my liver and needed to do a CT scan to seen what it is. I have a tumour on my liver but the doctors don't really know what it is and if it is alive or dead. The tumour has been there since day 1 and it has gone from 6cm x 4cm to 4cm to 3cm so we know it's not growing. The doctors had a big meeting all about me and even asked for a second opinion about me. Last week went like this: Monday - The doctor told me that after the meeting they have decided that it is to risky to remove and that the tumour is likely to be dead so they won't remove it and I wont need another operation but they will ask another doctor to see what he thinks. Tuesday - I went to see the doctor for my radiotherapy which is to start first week in July. Mummy and Daddy said we could go away for 1 week before the next stage of treatment starts. Daddy booked a caravan in Cornwall, starting this Saturday! Can't wait! Wednesday - Doctor calls to ask Mummy and Daddy to come in and speak to him on Friday. Thursday - I have a CT scan for the planning of radiotherapy, Surgeon phones to say I have been booked in for the following Wednesday for operation to remove tumour from liver! WHAT?? so we need to cancel our holiday/break :( Friday - Mummy and Daddy meet with the doctors and after asking loads of questions agree that the operation is in my best interest but have been told that they will not be able to remove all of the tumour! So there you go, I started the week hoping to go away but ended up being booked in for another major operation for this Wednesday! What a life! It sucks having cancer but Mummy and Daddy make me laugh everyday and am in great health so I hope this operation is like the last one. At the moment am in the "WHAT" stage and saying what to everything. I have taken up singing to the TV and am really cheeky to Mummy and Daddy. Am back to my normal little self, the way I was before transplant. Dancing and singing everyday and smiling through this fight against cancer. Am not letting this beast get me down. Am only 2 years and 7 months old, I have my entire life ahead of me! 2nd June 2007 What a month May was! Sorry for not updating my diary for almost a month but I have just had the worst month a child could have. The good news is am home and I survived transplant! I came home on Wednesday 30th May 2007, I was in transplant for only 19 days, then moved into secondary transplant so I could have visitors. Those 19 days where the longest of my life, I think Mummy and Daddy will agree with me on that. I can't imagine what Mummy and Daddy went through when I had 3 infections and the doctors talked about going to ICU because I was unable to take enough oxygen by myself. I was on oxygen for 7 days in total because of a chest infection and I was on every antibiotic going! Am feeling a lot better now am home, am eating and drinking again so I don't need the horrible NG Tube in my nose. Am still not walking but that will come back with time. I never even lost any weight when I was in transplant, which the doctors where very pleased about. Thank you everyone for all the cards and presents I received while I was in hospital. I received 100's of cards and presents from around the world. Mummy and Daddy received some too. Next step is radiotherapy, we have an appointment for the 12th June so we will see what happens and when they want us to start it. Am planning on having loads of fun the next few days :D Love Emma
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